Abstract
Background Advances in early detection and treatment of breast cancer has changed this disease from a fatal to chronic health condition. Recognition of informed decision-making and choices as the tenet of living well by the survivors motivates the development of credible and easily accessed information resources. Little is reported regarding the challenges specific to women in rural areas. Presently, available resources to encourage self-care are ineffective for women in our region, as evidenced by above the national average age- and stage-adjusted disease specific mortality rate. We have implemented a pilot project that leverages on technology to partner survivors and professionals that emphasize self regulation and health management
Methods Development of this web-based interactive resource is directed by an advisory board. The content, which embodies the regional cultural norms and limitations of resources, addresses the immediate and the long-term personal, family and health needs of the survivors. Features include strategies and cues to guide self-management, problem solving and decision-making. Cancer survivorship plans are promoted, with suggestions regarding developing and implementing. The website is hosted by Geisinger and linked to the-Patient-Provider Communication portal for readily accessible networking among survivors, the oncology team, and primary care providers. Alpha and beta testing are planned; once vetted and published; tracking metrics will be evaluated for ongoing assessment.
Results An advisory board that constitutes of a balanced number of survivors and health professionals has been assembled. During the initial face-to-face meeting, members confirmed the intricacies of health and life needs of the survivors in our region. The board endorsed the value of a technology-leveraged interactive communication portal with providers. Furthermore, it was unanimously agreed to first focus on survivors who have received their initial treatment at Geisinger; however, the importance of a long-term objective to expand the network to survivors external to Geisinger and to survivors from all cancers clearly resonated.
Conclusion This innovation actualizes our commitment to patient-centered care by aligning convenience, technology, and personalized care. It serves as a template that readily can be modified with potential application to other geographic areas.
