B3-1: Developing a Protocol for Patient Engagement in Research: The HMORN Member Engagement Work Group

  • Clinical Medicine & Research
  • September 2014,
  • 12
  • (1-2)
  • 105;
  • DOI: https://doi.org/10.3121/cmr.2014.1250.b3-1

Abstract

Background/Aims Integrated health care delivery systems are well positioned to engage patients in research due to their diverse patient populations. Managed care organizations cover 22.5% of the national population, making the establishment of a protocol for patient engagement in research in these settings particularly important. In 2012, researchers from the Institute for Health Research (IHR) identified resources and processes for patient engagement in the Kaiser Colorado region, and synthesized the findings in a Member Engagement Toolkit. After presenting this work at the 2013 HMORN conference the HMORN Member Engagement Workgroup [MEWG] was formed to compile current practices and identify priorities for further exploration. The MEWG aims to create a protocol and standards for member engagement in research and create instruments for measuring the success of engagement efforts in managed care settings.

Methods To do this we will conduct an environmental scan of engagement resources and processes currently available in the eight member organizations participating in the MEWG. We will use the IHR’s Member Engagement Toolkit as a model to develop a patient engagement toolkit for HMORN organizations that will be generalizable to managed care settings nationally. Using the data from the environmental scan we will identify engagement methods, resources, policies, principles, and logistics for use by research teams embedded in managed care organizations. The scan will catalog best practices and gaps in engagement efforts that can inform the development of standards to guide engagement practices in managed care settings. We will conduct a targeted literature search and interviews with key informants to identify instruments for measuring success, and inform the development of instruments.

Results The MEWG will incorporate the findings from the environmental scan, a literature review and interviews with key informants into a toolkit, and present the results of the environmental scan at the 2014 meeting. Findings will also be available on the HMORN website.

Conclusions NA

Loading
  • Print
  • Download PDF
  • Article Alerts
  • Email Article
  • Citation Tools
  • Share
  • Bookmark this Article